“My humanity is bound up in yours, for we can only be human together.”

- Desmond Tutu

Partner with Rare Melanin

At Rare Melanin, we are committed to amplifying Black voices and experiences within the rare disease community. By breaking barriers, promoting health equity, and fostering inclusivity in healthcare, we aim to improve the lives of Black patients and families navigating the challenges of rare disease. We can't achieve this alone—and that’s where you come in.

Why Partner with Us?

  1. Champion Health Equity: Partnering with Rare Melanin means joining the fight for equitable healthcare access and representation. You'll be helping to address the unique challenges faced by Black patients with rare diseases and helping eliminate disparities in care.

  2. Community Impact: Together, we can build supportive spaces for underserved communities. Your support enables us to develop initiatives like educational programs, awareness campaigns, and community engagement efforts that directly uplift Black voices in rare disease advocacy.

  3. Expert-Led Initiatives: With expertise spanning public health, advocacy, and research, we bring a unique perspective to the rare disease field. Partnering with Rare Melanin means supporting innovative, culturally responsive strategies to enhance patient outcomes and transform healthcare systems.

Ways to Partner with Us

  1. Sponsor Our Programs: Support initiatives that educate and empower Black families impacted by rare diseases. Your sponsorship can make a direct impact in underserved communities.

  2. Collaborate on Awareness Campaigns: Partner with us to develop and promote campaigns that raise awareness about rare diseases in Black communities. Together, we can bring vital information to those who need it most.

  3. Fund Research: Contribute to research initiatives that focus on the lived experiences of Black patients and their families. Help us highlight critical needs like diversity in clinical trials and rare disease studies.

  4. Join Our Network: Connect with us as a health organization, business, or community partner to amplify our shared mission. By joining our network, you can contribute your expertise, help shape our advocacy agenda, or offer resources to expand our reach.

  5. Volunteer Your Time: Whether you're an advocate, healthcare professional, educator, or simply passionate about equity in healthcare, there's a place for you at Rare Melanin. Volunteer with us to make a difference, from supporting events to offering mentorship to community members.

Together for Change

We believe in the power of community and partnership. Together, we can uplift the voices of those who have been unheard for too long, bridge the gaps in healthcare equity, and bring about lasting change in how rare diseases are treated and understood.

Interested in partnering with us?

Complete our contact form to learn more about how we can work together to make a difference.