“What I try to tell young people is that if you come together with a mission, and it’s grounded with love and a sense of community, you can make the impossible possible.”

-John Lewis

Mission

Rare Melanin was developed to center and amplify Black experiences in rare disease and help create awareness regarding the barriers that prevent Black patients and families impacted by rare disease from obtaining optimal health through the promotion of diversity, equity, and inclusion within healthcare.

Vision

Rare Melanin aims to be a premier health equity resource, empowering rare disease patients, their families, and the healthcare professionals and organizations that support them.